{"id":1147,"date":"2020-04-20T01:00:17","date_gmt":"2020-04-20T05:00:17","guid":{"rendered":"http:\/\/stories.umbc.edu\/?p=1147"},"modified":"2021-12-05T13:42:47","modified_gmt":"2021-12-05T18:42:47","slug":"the-digital-decameron-week-four","status":"publish","type":"post","link":"https:\/\/stories.umbc.edu\/index.php\/2020\/04\/20\/the-digital-decameron-week-four\/","title":{"rendered":"The Digital Decameron – Week Four"},"content":{"rendered":"

This week curated by:<\/em><\/p>\n

Pip Hardy & Tony Sumner – Patient Voices, UK<\/em><\/h3>\n

At the Patient Voices Programme<\/a> we’ve helped many people create stories of strength and resolve over the 17 years we have been facilitating reflective digital storytelling – and we’ve even made some of our own. So we agreed to curate ten stories for one week of the Decameron. These are personal works and personal choices. They touch on some of the most powerful experiences of our lives – mental and physical health, chronic pain, cancer, dementia, alcoholism, HIV\/AIDS, growing up, the loss of a sister or a child. We hope that these, and the others in the Decameron will inspire reflection and strength in the viewer<\/p><\/blockquote>\n

\n

A patient meditation<\/a>
\nA story about the inner strength that can come from meditation and mindfulness.
\nA frozen shoulder can generate agonising pain at all times of the day or night. When painkillers and steroids fail to provide relief, a particularly long night provides an opportunity to meditate on the nature of suffering.<\/p>\n

Hearing voices isn\u2019t all bad<\/a>
\nA story about how important it is to find the right tools to give us strength.
\nWenda has heard voices for twenty years. Initially, medication worked well and she didn\u2019t hear too many voices for around 17 years. In the last four years the voices have increased dramatically, and she has been using DBT, Tai Chi and Kung Fu to manage them. But those voices can also bring something else \u2013 they can be supportive, positive and guiding, and they reaffirm her faith. Her psychologist says that he does not see any signs of EUPD, and that she has an unspecified psychosis.<\/p>\n

Olives<\/a>
\nA story about how growing up changes us.
\nJo, the creator, says \u201cMy twin granddaughters love this story! That\u2019s a good enough accolade for me. The prompt was \u2018the first time\u2026\u2019 and the story popped out almost as you hear it, scribbled on a post card. It\u2019s short but has a sense of a lifetime passing, unfolding. Change happens.\u201d<\/p>\n

The Sun also rises<\/a>
\nA story about acceptance and the wisdom of age, made by Eva as one of a series of four about her life.
\nFor Eva, the ability to use the right words to express herself has always been important. At 84 years old, the possibility of a diagnosis of Dementia is a dark and frightening one. But the inspiration of a sunrise, and the joy of her garden bring back to her that, as the sun sets in one place, so does it rise somewhere else.<\/p>\n

Sunshine<\/a>
\nA story that pays tribute to the strength that comes from a loving family \u2013 and the benefits of sunshine.
\nThe list of things to which Seema is allergic has grown and grown since she was a tiny baby first diagnosed with a milk allergy. She is no stranger to anaphylactic shock but it has taken its toll on her confidence and self-esteem. A caring doctor, gentle nurses, wet wraps, regular injections, playing the piano and regular visits to warmer climes have helped her to cope with her condition.<\/p>\n

The gift of hopelessness<\/a>
\nA story about the power of love, compassion and emotional honesty.
\nWhen Rita\u2019s lively, energetic son unexpectedly falls asleep on the back of her bicycle, it marks the beginning of a long \u2013 and often surreal \u2013 journey, as the malignant tumour growing in Brandon\u2019s brain changes everything for the whole family.<\/p>\n

Surviving<\/a>
\nA story of how determination and faith can carry us through adversity.
\nMental Health difficulties can have devastating effects on individuals and their families. Julie\u2019s story reveals her courageous and loving attempts to overcome tragedy and offers hope through her recognition that life goes on.<\/p>\n

Stickers<\/a>
\nA story that gives insight into the strength given by humour.
\nPaediatrics was the obvious choice for Claudia: she was curious and caring, fun-loving and full of energy \u2013 which was just as well as she found herself running faster and faster to keep pace with clinical work, research and leading a team. Only when life deals her some challenges, does she understand the true meaning of resilience, become able to stop and find a slower pace, learn important lessons about caring and being cared for\u2026.and discover the value of stickers!<\/p>\n

Touch<\/a>
\nA story about the power of human contact and compassion.
\nThe choices we make in our personal and professional lives may be made despite, or because of, our own experiences, but they are always affected by them. A consultant anaesthetist tells of how the discovery of his own physical and emotional vulnerabilities when he became a patient has informed his care for his patients, his colleagues and himself.<\/p>\n

Just for today<\/a>
\nA story about the strength we can gain from inner determination and external support.
\nDespite being in a loving relationship, the stress and anguish of caring for and watching many friends die from AIDS led Dave to befriend the likes of Jack, Johnny and Stella. With faith, determination and support, Dave managed to overcome his addiction and continues to care for the love of his life \u2013and support others who care for those they love<\/p>\n

A patient meditation<\/a>
\nTony\u2019s hospital story \u2013 the need to be understood and the power of writing<\/p>\n

 <\/p>\n

View the Digital Decameron on the Patient Voices<\/em> site<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

This week curated by: Pip Hardy & Tony Sumner – Patient Voices, UK At the Patient Voices Programme we’ve helped many people create stories of strength and resolve over the 17 years we have been facilitating reflective digital storytelling – and we’ve even made some of our own. So we agreed to curate ten stories … Read more<\/a><\/p>\n","protected":false},"author":1,"featured_media":1155,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"cybocfi_hide_featured_image":""},"categories":[11],"tags":[],"yoast_head":"\nThe Digital Decameron - Week Four - Digital Storytelling @ UMBC<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/stories.umbc.edu\/index.php\/2020\/04\/20\/the-digital-decameron-week-four\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Digital Decameron - Week Four - Digital Storytelling @ UMBC\" \/>\n<meta property=\"og:description\" content=\"This week curated by: Pip Hardy & Tony Sumner – Patient Voices, UK At the Patient Voices Programme we’ve helped many people create stories of strength and resolve over the 17 years we have been facilitating reflective digital storytelling – and we’ve even made some of our own. 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